Greetings from Room 360 West, Thornton Hospital, UCSD Medical Center, La Jolla, California, USA. I’m happy to report that, all in all, today has been a good day.
Chemotherapy continues with little in the way of major side-effects, for which I am truly grateful. It is still very early in the process, and while further adverse effects are to be expected, the only hiccup so far has been just that–a wicked case of hiccups. Apparently this is a common reaction to Decadron, which is a steroid I’m being given in combination with Cytoxan, which they’re cycling through me via IV every 12 hours. My next scheduled dosage will start at 10pm Pacific, and typically takes about 3-3.5 hours to complete. Tomorrow will be my last day of the Cytoxan, and then they will transition me to one day of Doxorubicin and Vincristine along with one more dose of the the hiccup-inducing Decadron. I’m drinking lots of water, and I’ve got saline and potassium on a constant drip which helps to ensure all these toxins don’t hang around in my body any longer than we need them to.
Monday morning they implanted a device called a Smart Port in my chest. It’s a little circular metal disk which feeds my medication and fluids directly into my blood stream and removes the need for a pick line or traditional IV. They just stick the needle through a thin piece of skin, into the port, and start the drip. When I leave, they’ll just pull the needle, and the port will remain in my chest until I’m ready to come back for my next treatment. It’s much easier to keep clean and minimize risk of infection. I’m learning so much about hospitals, drugs, oncology, technology…it’s all pretty amazing.
I had a nice visit from my friends Shay Davis and Hank Connell this evening, so that was good for my spirits. Shay is an amazing artist, and he’s got a lot of great glycee prints ready to ship for the holiday season. Check them out at www.shayvision.com. Oh, and Hank’s not a bad guy either!
Well, Nurse Kim is here with more hiccup pills and some Zofran (anti-nausea), so I’ll sign off for now. Lots of love and gratitude coming from me and my family to all of you. I can’t tell you how humbling your support and encouragement has been. One day at a time until I’m healthy!
Ty, is there a reason they administer chemo at 10PM? Just curious. Brad and Winston are snoring away. Good luck with treatment tonight. Hopefully you will sleep well and have some good dreams. Always thinking of you and trying to keep abreast of what’s going on. Thank you Lord for computers and internet. Stay strong. Good night and sleep tight. Signing off, Monica
HII Ameh Monica, I think that was the handy time for when Ty was ‘ready’ on Monday. I think they need a convenient time, 10 am & 10 pm, after breakfast and dinner, doesn’t interrupt that much sleep, etc. On start day, they also had to wait for the Port installation and heart test, so nighttime fit better.
PS: Tyler looks great!
So glad you are weathering things ok so far, Tyler.
Is Nurse Kim cute? Is she single? In my appropriate age range? If so, can you score her digits for next time I visit? Btw, try to find out what kind of sushi she likes, just in case that knowledge proves useful. And her favorite kind of music. Tell her I like all kinds, especially what she’s into. Talk me up. I like dragon rolls. (proud of you, homie, keep up the good work and spirits–and get used to me posting obnoxious stuff like this)
Tyler…your Nebraska team is rooting for you! This is a tough one, but with a Blackshirt t-shirt on, you’re sure to do well. Best to you and your wonderful family.
Cytoxan, Decadron, Doxorubicin? You’ll be hearing from the Decepticons’ trademark attorney!
I think the hospital knows that 10:00 p.m is about the time that Tyler begins taking in fluids when he hits the bars. Steve Y
Tash, how do we upload a pic instead of being identified as an “pretty icon”. AMEH
I think you just make a wordpress account and add it to your profile