Treatment Update: Day 1

Tyler is mad at cancer. Let’s call this pre-game and Tyler is getting pumped. Tonight at 10 pm he will get his first dose of chemo. He had a port implanted in his chest today. That will be his line to take in all his chemo friends and use them to punish. He is now warming up, getting fluids pumped to prep his delicate innards for the fight ahead.

An individual’s response to medicine is just that, individual. We have no idea what to expect. We are taking deep breaths, and thinking before we speak. There is tension, no question about it.

A NOTE ABOUT VISITATION AND GIFTS: Continue reading

Initial Updates from Leigh

Ty & Leigh

Ty & Leigh at Guy and Elizabeth Perkins’ wedding, summer 2011

This post is long, but I wanted to archive the emails I sent to friends and family about what was going on with Tyler, from the beginning (at least from the beginning of our awareness of the condition).

Thursday, December 8, 2011

Good morning,

I wanted to send an email to update on a little life curve ball… It feels kind of strange to tell in an email, but I wanted you to hear it from me.

The Itch

I have a story to tell you. . .it’s from “Gently Lead” . . . a great little book for children . . . exposing them to God

Itchy  (could be called cancer)

Child:  I have this itch on my knee.  It’s bothering me.  I can’t get to sleep with all this itching.

Parent:  Well, it’s time for prayers now.  Maybe if you can stop thinking about it you won’t notice it.  Try thinking about something else.

Child:  But I can’t stop thinking about it.  It itches!  How can you think of something else if you itch?

Continue reading

A roller-derby tribute from Heidi

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Heidi Tribute

A tribute from Heidi Hassler

I skated my bout last night for Tyler, and attached are a couple pics. I customized my eye black (vs. my mouth guard) for Tyler.  Dan was worried that if I painted my mouth guard, I may seize out on the track from paint poisoning and I figured that would be no bueno.  We’re sending all of our love & support for Tyler’s fight against NHL.

–Heidi (aka Hassle-Her) and Dan

The Weirdest Sense of Relief: The Treatment Plan

Tyler on Red Rocket after 100mi ride

The waiting in the last week has been torturous. Maddening. Actually, I won’t even try to type those emotions out, because there are no words. And that is just from my point of view, to even try to imagine how Tyler has felt in the last few days is beyond my simple human brain. So when the treatment plan was briefly outlined by Tyler’s doctor last night, and I felt like jumping for joy after, and Tyler was stunned and pokerfaced, I will never know how or if our emotions ever intersected.

For those that were not in the room, here is my side of the story: Continue reading