Spring Update

Jack Wagner

Double Trouble (circa 2000)

We’ve been holding on to the premise that no news is good news, so with that in mind, it’s a good thing that this is my first entry of 2013.

Right to it then:

  • Still Cancer Free: I had a Pet Scan last week, and it came back 100% clean and clear. My previous scan (from December) showed some activity at the periphery of the mediastinum (around the edge of my chest), which the radiologist had attributed to the residual effects of radiation.  This activity no longer shows up on the scan, which is Great news.
  • Dose Adjustments: Maintenance chemotherapy hasn’t been without its challenges.  We’ve had to make several adjustments to decrease the dosage of my oral medications (methotrexate and mercaptopurine), and have had to take a week off here and there to give my body a chance to recover.  By nature, chemotherapy is immunosupressive, but it’s a fine line between acceptably decreased cell counts and the dangers of neutropenia.  Thank God (and science) for neupogen, and for antibacterial hand sanitizer (I don’t leave home without it).
  • Lhermitte’s Sign: Just when you think you’ve experienced every strange side-effect under the sun, along comes Lhermitte’s Sign.  Back in/around December, I started noticing strange nerve pain and electrical sensations when I looked down (chin to chest). Initially I ignored it, hoping it would go away, but when it got worse I began doing some research and decided to mention it to my doctor.  He confirmed our suspicions, that this was likely a residual effect of high dose chemo/radiation therapy.  Fortunately, in my case the condition is “self-limited”, meaning that it should resolve itself over time and without treatment.  It’s painful and unpleasant, and exercise makes it worse, which has added some additional excitement to my cycling and running.  I have a new found empathy for people fighting multiple-sclerosis – what a terrible disease.
  • RIP Jack Wagner: When I was 17 years old, I made good on a threat to bring home a dog.  He was wild and energetic.  He was funny.  He was smart.  He was loyal.  He was a biter!  And, for 13 1/2 years, Jack was a member of the family.  A few months ago, he was diagnosed with (believe it or not) lymphoma, and last week we had to say goodbye.  Natasha believes that Jack was sent here to take away my lymphoma.  What a beautiful, romantic, bitter-sweet idea that is.  I hope it’s true.

Battling cancer has made me hyper-aware of just how many people in my life (friends and family) are touched by this disease.  Today my thoughts are with those people in my life (and there really are too many) who have been recently diagnosed; who are in the middle of the fight; who deal with constant tests, scans and fears of recurrence; and to those, like Jack who’s battle is over, and who are in a better place – chasing squirrels in heaven 🙂

–T

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Get Well, FAST!

Jake's Racecar

Hoping for a speedy recovery

Greetings from the kitchen table, stocked with steel-cut oats, fresh fruit, a splash of coffee, and my ever-present companion, Jar of Peanut Butter.

Round 2A is in the rear view mirror (pause for applause)!

A quick update for everyone: I was hospitalized from Feb. 1st through 5th for what was our third round of inpatient chemo treatment, or the second round of the “A” cycle of my Hyper CVAD regimen.  Everything went as smoothly as we could have hoped and I made it home in time to catch the Superbowl from the comfort of my own couch.  God Bless America.  Monitoring my cell counts will be especially important over the next few days, but so far, so good.  No fevers, and no Dumb and Dumber re-enactments (knock on wood).

Get better fast

Words of encouragement from my friend Jake. Thanks buddy!

I was feeling well enough to jump on my bike for a quick ride on Sunday before the game, but have noticed a drop in energy over the past 24 hours.  I probably won’t get back out on the road again until my counts return to normal, but it’s gray outside and the rain is coming, so movies on the couch sounds alright for now.

My buddy Jake Harris, has been keeping me motivated with his original artwork throughout this process, so I thought I would share.  Solid advice from Jake, I’d say.

If all goes to plan, I’ll be back at it for round 2B on or around Feb. 22nd–but that’s getting ahead of ourselves.  Speedy recovery, one day at a time.

Lots of love,
–T

TEAM TYLER Livestrong Bands are here!!!

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Our lime-green TEAM TYLER Livestrong bands have arrived!  Thanks Uncle Jimmy, Debbie, Anthony, and Kathryn for you generous gift and for bringing our TEAM TYLER unity to new heights!

We’ve got A LOT of these things, and I know we’ve had some requests already.  If you’d like to request some bands, shoot us an email at goteamtyler@gmail.com and let us know the best place to send them.  Snail-mail, hand delivery, or carrier pigeon, whatever it takes, we’re gonna do our best to get these out to you guys ASAP.

GO TEAM!

Adding to the Anti-Cancer Arsenal: Thanks Team Tyler!

Greetings and Good Evening Team Tyler,

Today was a good day.  I continue to be humbled and amazed by the outpouring of love and support that I’m feeling from all of you.  I am truly blessed to have so many wonderful, positive, supportive people in my life.  It’s hard to find words to express my gratitude to you all.  THANK YOU.

Our arsenal in this fight is growing by the day.  I wanted to give you all an important update on the tools that we have at our disposal in this long and grueling race: Continue reading

Christmas came early!

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My good friend and century training partner Eliot stopped by after work to give me a pep talk and gifted me a sick new pair of livestrong Oakley’s! As you can see from the pic, these babys are HOT!

Obviously I’m not putting them to their ideal use tonite from the couch watching MNF, but at least I look fast doing it; and Eliot assured me they would assist in a speedy recovery. Eliot and I have plans to ride from Vancouver to Whistler, BC (laughing all the way) when this is all behind us. How’s that for motivtion!?

Thanks Eliot, Steph, and Ethan! Love you guys and hope you have a blast in Mammmoth!

–T